What is MDS?
Myelodysplastic Syndromes (MDS) are clonal disorders of the hematopoietic stem cells, characterized by inefficient hematopoiesis (variable cytopenias in the peripheral blood, in contrast with normal/hypocellular hematopoietic bone marrow), associated with an increased risk of developing acute leukemia. The abnormal cellular “growth” and “death” involved in MDS make it one of the hematologic conditions most difficult to treat.
The ASPLA message: Be an informed patient
In the era of the internet, access to information should no longer be a problem – nevertheless, in Romania there is a shortage of accessible medical resources, particularly in the field of hematology, and we are overwhelmed by incomplete and unverified information.
Our physicians, although well-trained and dedicated to their work, are struggling within an inefficient medical system and they lack the necessary means to offer every patient what they need: in-depth investigations, a clear diagnosis (which is particularly difficult to determine in blood and bone marrow disorders) explained in plain terms and comprehensive solutions – medical treatments and therapies, accompanied by a healthy lifestyle and diet, tailored to every condition and treatment regimen.
ASPLA supports information and awareness as crucial elements in disease management. An informed patient is able to understand his condition, he can communicate more easily and efficiently with the physician and he can make the right decisions for his own body. An informed patient has a better chance at recovery. An informed patient is more than just someone suffering from an illness – an informed patient is a stronger individual.
That is why ASPLA comes to support patients with hematologic diseases by offering them accurate and up-to-date information regarding the medical, social and psychological implications of this type of disorder, as well as different approaches and solutions. Moreover, ASPLA supports physicians through a series of brochures, put together under their guidance and supervision, designed to be accessible and easily comprehensible to patients.